{"id":156,"date":"2021-06-11T10:45:18","date_gmt":"2021-06-11T10:45:18","guid":{"rendered":"https:\/\/bf2021.wpengine.com\/?page_id=156"},"modified":"2025-11-11T03:05:34","modified_gmt":"2025-11-11T03:05:34","slug":"welcome-test-page","status":"publish","type":"page","link":"https:\/\/synovialsarcomasurvivors.org\/","title":{"rendered":"Finding support for Synovial Sarcoma? Connect with people like you."},"content":{"rendered":"<p>!<img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-421\" src=\"http:\/\/synovialsarcomasurvivors.org\/wp-content\/uploads\/2024\/04\/Synovial-1-300x125.png\" alt=\"A welcome banner for Synovial Sarcoma Survivors community featuring a group of hands symbolizing unity\" width=\"787\" height=\"328\" srcset=\"https:\/\/synovialsarcomasurvivors.org\/wp-content\/uploads\/2024\/04\/Synovial-1-300x125.png 300w, https:\/\/synovialsarcomasurvivors.org\/wp-content\/uploads\/2024\/04\/Synovial-1.png 720w\" sizes=\"(max-width: 787px) 100vw, 787px\" \/><\/p>\n<h4>Welcome to Synovial Sarcoma Survivors<\/h4>\n<p><strong>Synovial Sarcoma Survivors<\/strong>\u00a0is an online patient support community that is powered by <em><strong><a href=\"http:\/\/bensfriends.org\/\" target=\"_blank\" rel=\"noopener\">BensFriends.org<\/a>,<\/strong><\/em> a network of patient support communities for rare diseases. Our mission at <em>Ben\u2019s Friends <\/em>is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n<p><strong data-start=\"69\" data-end=\"89\">Synovial sarcoma<\/strong>, also called <em data-start=\"103\" data-end=\"124\">malignant synovioma<\/em>, is a rare soft tissue cancer that usually develops in the arms or legs near joints and tendons. Though most common in the limbs, it can also occur in other parts of the body, including the brain, prostate, and heart.<\/p>\n<h4>Join Our Supportive Community<\/h4>\n<p data-start=\"264\" data-end=\"623\"><strong data-start=\"264\" data-end=\"294\">Synovial Sarcoma Survivors<\/strong> is an online support community where patients and families affected by <strong data-start=\"366\" data-end=\"386\">Synovial Sarcoma<\/strong>\u2014a rare form of soft tissue cancer\u2014can connect, share experiences, and find strength together. Our safe and caring space welcomes members as young as 12, offering a place for open discussion, emotional support, and trusted information.<\/p>\n<p data-start=\"625\" data-end=\"955\">Members of our <strong data-start=\"640\" data-end=\"673\">rare cancer support community<\/strong> come from all walks of life. Some have strong religious faith, while others do not. Some are newly diagnosed, others are long-term survivors or caregivers. Despite our differences, we share a common goal: to help each other through the challenges of living with Synovial Sarcoma.<\/p>\n<p data-start=\"957\" data-end=\"1230\">While medical doctors occasionally visit the site, licensed professionals do not routinely monitor discussions. Our members cannot diagnose conditions or prescribe treatments, but they share valuable insights and personal experiences that can help guide informed choices.<\/p>\n<p data-start=\"1232\" data-end=\"1473\">At <strong data-start=\"1235\" data-end=\"1265\">Synovial Sarcoma Survivors<\/strong>, we encourage everyone to seek advice from qualified medical professionals before making any healthcare decisions. Our community exists to provide understanding, hope, and connection\u2014not medical direction.<\/p>\n<p data-start=\"1475\" data-end=\"1667\">Join our supportive space today and connect with people who truly understand what it means to live with Synovial Sarcoma. Together, we build strength through shared knowledge and compassion.<\/p>\n<p style=\"text-align: right;\"><strong><a href=\"http:\/\/synovialsarcomasurvivors.org\/?page_id=198\" target=\"_blank\" rel=\"noopener\">Read More&#8230;<\/a><\/strong><\/p>\n<p><iframe title=\"Rare Disease Patient Communities by BensFriends.org\" width=\"648\" height=\"365\" src=\"https:\/\/www.youtube.com\/embed\/YBeRFnJkleU?list=PLho5Q53hrd4arNr-uM9ToVKSo09Lvg8Cx\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<h2 style=\"text-align: left;\"><strong>How is Ben\u2019s Friends Different from Social Media and Other Support Sites?<\/strong><\/h2>\n<p>Our mission at Ben\u2019s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n<p>We\u2019re interested in you as a person, and in your struggles as a rare disease patient.\u00a0 But we don\u2019t want to know your name or where you live. We won\u2019t even allow you to use your real name when you register for one of our communities. Because when it comes to medical things, anonymity is important in our googly universe.\u00a0 Your information is never shared, and your activity never tracked by adware.<\/p>\n<p>When Ben\u2019s Friends asks for the country and region you live in, that\u2019s in case your fellow members can recommend local resources and help, and so everyone knows what kind of medical system there is where you live.\u00a0 That\u2019s important when it comes to giving and getting support. Because we are all about support, and we\u2019re all in this together..\u00a0<\/p>\n<p>Ben\u2019s Friends: <strong>Safe and Supportive.\u00a0<\/strong><br \/>And <strong>anonymous<\/strong> to keep it that way.<\/p>\n<div>\u00a0<\/div>\n<h2 style=\"text-align: left;\"><b>Why create an account?<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Posts on the different Ben\u2019s Friends communities can be read by anyone on the internet. You can browse through the different topics and find most of the information you\u2019re looking for but there are many things you won\u2019t be able to do unless you create an account. These include:<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Making your own posts<\/span><\/i><span style=\"font-weight: 400;\">. Although you\u2019re able to find useful information just by reading other members\u2019 posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won\u2019t be possible unless you create a new user account.<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Viewing other members\u2019 profiles<\/span><\/i><span style=\"font-weight: 400;\">. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you\u2019re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.\u00a0\u00a0<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Sending private messages.<\/span><\/i><span style=\"font-weight: 400;\"> Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.<\/span><\/p>\n<p><a href=\"https:\/\/forum.synovialsarcomasurvivors.org\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Click here to create an account and join.<\/span><\/a><\/p>\n<div>\u00a0<\/div>\n<h2 style=\"text-align: left;\"><strong>Latest Discussions<\/strong><\/h2>\n\n<div class=\"feedzy-e8490f6e522497cc722694ccb29c1092 feedzy-rss\"><ul><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.synovialsarcomasurvivors.org\/t\/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community\/2908\" target=\"_blank\" rel=\" noopener\">Today is Giving Tuesday. Here Are Two Easy Ways to Help Our Community<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.synovialsarcomasurvivors.org\" target=\"_blank\" title=\"forum.synovialsarcomasurvivors.org\">Ben_Munoz<\/a> on December 2, 2025 <\/small><p>Hi everyone,\nToday is Giving Tuesday, a day when many people look for meaningful causes to support. If you would like to help our community today, here are two simple and meaningful options.\n1) Share our campaign with friends or family\nThis is one of the most helpful things members can do. Even if you cannot donate, you can still make a big impact by spreading the word. Here are a few [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.synovialsarcomasurvivors.org\/t\/our-community-is-coming-together-here-is-how-you-can-help\/2905\" target=\"_blank\" rel=\" noopener\">Our Community Is Coming Together. Here Is How You Can Help<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.synovialsarcomasurvivors.org\" target=\"_blank\" title=\"forum.synovialsarcomasurvivors.org\">Ben_Munoz<\/a> on November 25, 2025 <\/small><p>Hi everyone,\nAs we approach the end of the year, our entire Ben\u2019s Friends network is launching our annual community support campaign. Each forum plays an important role, so we wanted to share a few simple ways you can help strengthen this space we all rely on.\nMost importantly, there is never any expectation to give financially. Just being here, supporting one another, and sharing your [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.synovialsarcomasurvivors.org\/t\/synovial-sarcoma-survivor-stories-how-kate-huggins-found-hope-and-strength-after-cancer\/2891\" target=\"_blank\" rel=\" noopener\">Synovial Sarcoma Survivor Stories: How Kate Huggins Found Hope and Strength After Cancer<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.synovialsarcomasurvivors.org\" target=\"_blank\" title=\"forum.synovialsarcomasurvivors.org\">ModSupport<\/a> on November 11, 2025 <\/small><p>When you hear the words Synovial Sarcoma, they often bring fear. It\u2019s rare. It\u2019s aggressive. It can feel isolating. But this story is about hope, resilience, and transformation.\nMeet Kate Huggins\u2014a two\u2011time synovial sarcoma survivor who refused to let her diagnosis define her future. After facing the disease twice, she worried she might never conceive children. Today, she\u2019s a mother of [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.synovialsarcomasurvivors.org\/t\/frequently-asked-questions-about-synovial-sarcoma\/2890\" target=\"_blank\" rel=\" noopener\">Frequently Asked Questions About Synovial Sarcoma<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.synovialsarcomasurvivors.org\" target=\"_blank\" title=\"forum.synovialsarcomasurvivors.org\">ModSupport<\/a> on November 11, 2025 <\/small><p>What is Synovial Sarcoma?\nSynovial sarcoma is a rare form of soft tissue cancer that usually develops near the joints of the arms or legs. Despite its name, it doesn\u2019t actually come from synovial tissue but can occur in almost any part of the body, including the lungs or abdomen.\nWhat are the symptoms?\nSymptoms vary but often include a lump or swelling that may be painful or tender. Some [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.synovialsarcomasurvivors.org\/t\/last-chance-to-support-ben-s-friends-in-2024-every-donation-counts\/2889\" target=\"_blank\" rel=\" noopener\">Last Chance to Support Ben\u2019s Friends in 2024 &#8211; Every Donation Counts!<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.synovialsarcomasurvivors.org\" target=\"_blank\" title=\"forum.synovialsarcomasurvivors.org\">Ben_Munoz<\/a> on December 30, 2024 <\/small><p>As we count down the final hours of 2024, I want to personally thank the 100+ donors who have already contributed over $27,000 to our Friends Helping Friends campaign.\nYour generosity is nothing short of inspiring, and it lays the foundation for the vital work Ben\u2019s Friends will accomplish in 2025.\nWhile we haven\u2019t quite reached our campaign goal yet, there is still time for you to help.\n1) [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.synovialsarcomasurvivors.org\/t\/from-isolation-to-connection-the-role-of-community-support\/2880\" target=\"_blank\" rel=\" noopener\">From Isolation to Connection: The Role of Community Support<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.synovialsarcomasurvivors.org\" target=\"_blank\" title=\"forum.synovialsarcomasurvivors.org\">Ben_Munoz<\/a> on December 19, 2024 <\/small><p>As we approach the end of our year-end campaign, I wanted to share a powerful reminder of the impact your support makes.\nA Message from the Heart:\nWe\u2019ve just received an incredibly moving video from Jaz, one of our community members. In just a few moments, she captures the essence of why your support for Ben\u2019s Friends is so crucial.\nWatch Jaz\u2019s Powerful Message Now\n\nJaz\u2019s words remind us [&hellip;]<\/p><\/div><\/li><\/ul> <\/div><style type=\"text\/css\" media=\"all\">.feedzy-rss .rss_item .rss_image{float:left;position:relative;border:none;text-decoration:none;max-width:100%}.feedzy-rss .rss_item .rss_image span{display:inline-block;position:absolute;width:100%;height:100%;background-position:50%;background-size:cover}.feedzy-rss .rss_item .rss_image{margin:.3em 1em 0 0;content-visibility:auto}.feedzy-rss ul{list-style:none}.feedzy-rss ul li{display:inline-block}<\/style>","protected":false},"excerpt":{"rendered":"<p>! Welcome to Synovial Sarcoma Survivors Synovial Sarcoma Survivors\u00a0is an online patient support community that is powered by BensFriends.org, a network of patient support communities for rare diseases. 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